Classical Ehlers-Danlos Syndrome
Daisy, Young Healthwatch volunteer, writes the second blog about the rare disease, Ehlers-Danlos Syndrome Classical Ehlers-Danlos Syndrome Hello everyone, it’s Daisy again. This is the second blog in the series about Ehlers-Danlos syndrome. I am
Spreading awareness of Ehlers-Danlos Syndrome
Daisy, Young Healthwatch volunteer, writes the first in a series of blogs about the rare disease, Ehlers-Danlos Syndrome My name is Daisy, I live in Central Bedfordshire and I have a rare disease. It's called Ehlers-Danlos Syndrome (pronounced Ay-Lers Dan-loss
What it is like having a Pen pal
Valentina and Molly, Young Healthwatch volunteers, share their experiences of being involved in the Pen pal scheme with Respite at Home Valentina writes Having a pen pal has been a very rewarding activity. It has
How have the Covid-19 restrictions affected you?
Susan Clark, Healthwatch Central Bedfordshire volunteer, put this question to a number of older people, aged 71 to 92 I have recently spoken to a variety of people aged 71 to 92, from all walks
Phone call appointment – Rheumatology, Luton & Dunstable Hospital
Daisy, one of our young volunteers, shares her experience of a recent telephone appointment with Luton & Dunstable Hospital I had a telephone appointment with the rheumatology department at Luton & Dunstable Hospital. It was
Travelling during lockdown
Molly, a young volunteer, writes about her travels during lockdown During lockdown, I have travelled to York. Our visit to York was very different because of the current situation. As we entered our hotel, there