In Daisy's final blog about the rare disease, Ehlers-Danlos Syndrome, she informs us about Postural Orthostatic Tachycardia Syndrome, a comorbidity. Many people with Ehlers-Danlos syndrome have Postural Orthostatic Tachycardia Syndrome, commonly referred to as POTS.
Dave, Healthwatch volunteer, recently had need of accessing the NHS for non COVID-19 reasons. Shortly after the New Year I discovered a ‘lump’ which had appeared on my forehead. I thought I would wait a
In Daisy's 7th blog she discusses management and treatment of the rare disease, Ehlers-Danlos Syndrome, Hi everyone. Today I am going to be discussing management and treatment. Although there is no cure for Ehlers Danlos
In the sixth blog of the series about the rare disease, Ehlers-Danlos Syndrome, Daisy explains about the common comorbidities of the condition. Hello everyone, this is the 6th blog in the Ehlers-Danlos syndrome series, and it is
admin2021-02-16T11:29:33+00:00 16th February 2021 |
In the fifth blog of the series about the rare disease, Ehlers-Danlos Syndrome, Daisy explains her journey to diagnosis My Diagnosis This is the 5th blog in the Ehlers-Danlos Syndrome series. It is about how I