In Daisy's 7th blog she discusses management and treatment of the rare disease, Ehlers-Danlos Syndrome, Hi everyone. Today I am going to be discussing management and treatment. Although there is no cure for Ehlers Danlos

In the sixth blog of the series about the rare disease, Ehlers-Danlos Syndrome, Daisy explains about the common comorbidities of the condition. Hello everyone, this is the 6th blog in the Ehlers-Danlos syndrome series, and it is

In the fifth blog of the series about the rare disease, Ehlers-Danlos Syndrome, Daisy explains her journey to diagnosis My Diagnosis This is the 5th blog in the Ehlers-Danlos Syndrome series. It is about how I

Susan Clark, HWCB volunteer, tells us about having the Covid-19 vaccination. I went for my appointment via the NHS, not the doctor's surgery on Saturday 6th Feb at 12.50. My appointment was at the Redgrave

Daisy, Young Healthwatch volunteer, writes the fourth blog in the series about the rare disease, Ehlers-Danlos Syndrome Vascular Ehlers-Danlos Syndrome Hi everyone, I hope you are doing well. This is the 4th blog in the

Young Healthwatch volunteer, Valentina, writes an emotional article about her online friendship, through the pen pal scheme. Some people are fortunate to have never lost anyone in their lives. Others aren’t that lucky. I have quite a