Daisy, Young Healthwatch volunteer, writes the third blog about the rare disease, Ehlers-Danlos Syndrome Hypermobile Ehlers-Danlos Syndrome Hello! This is the 3rd blog in the Ehlers-Danlos syndrome series. As I said in the last blog,

Daisy, Young Healthwatch volunteer, writes the second blog about the rare disease, Ehlers-Danlos Syndrome Classical Ehlers-Danlos Syndrome Hello everyone, it’s Daisy again. This is the second blog in the series about Ehlers-Danlos syndrome. I am

Daisy, Young Healthwatch volunteer, writes the first in a series of blogs about the rare disease, Ehlers-Danlos Syndrome My name is Daisy, I live in Central Bedfordshire and I have a rare disease.  It's called Ehlers-Danlos Syndrome (pronounced Ay-Lers Dan-loss

Valentina and Molly, Young Healthwatch volunteers, share their experiences of being involved in the Pen pal scheme with Respite at Home Valentina writes Having a pen pal has been a very rewarding activity. It has

Susan Clark, Healthwatch Central Bedfordshire volunteer, put this question to a number of older people, aged 71 to 92 I have recently spoken to a variety of people aged 71 to 92, from all walks

Daisy, one of our young volunteers, shares her experience of a recent telephone appointment with Luton & Dunstable Hospital I had a telephone appointment with the rheumatology department at Luton & Dunstable Hospital. It was