Blog

In Daisy's 7th blog she discusses management and treatment of the rare disease, Ehlers-Danlos Syndrome, Hi everyone. Today I am going to

In the sixth blog of the series about the rare disease, Ehlers-Danlos Syndrome, Daisy explains about the common comorbidities of the condition.

In the fifth blog of the series about the rare disease, Ehlers-Danlos Syndrome, Daisy explains her journey to diagnosis My Diagnosis This is

Susan Clark, HWCB volunteer, tells us about having the Covid-19 vaccination. I went for my appointment via the NHS, not the doctor's

Daisy, Young Healthwatch volunteer, writes the fourth blog in the series about the rare disease, Ehlers-Danlos Syndrome Vascular Ehlers-Danlos Syndrome Hi everyone,

Young Healthwatch volunteer, Valentina, writes an emotional article about her online friendship, through the pen pal scheme. Some people are fortunate to

Daisy, Young Healthwatch volunteer, writes the third blog about the rare disease, Ehlers-Danlos Syndrome Hypermobile Ehlers-Danlos Syndrome Hello! This is the 3rd

Daisy, Young Healthwatch volunteer, writes the second blog about the rare disease, Ehlers-Danlos Syndrome Classical Ehlers-Danlos Syndrome Hello everyone, it’s Daisy again.

Daisy, Young Healthwatch volunteer, writes the first in a series of blogs about the rare disease, Ehlers-Danlos Syndrome My name is Daisy,

Valentina and Molly, Young Healthwatch volunteers, share their experiences of being involved in the Pen pal scheme with Respite at Home Valentina