In Daisy's final blog about the rare disease, Ehlers-Danlos Syndrome, she informs us about Postural Orthostatic Tachycardia Syndrome, a comorbidity. Many people
Dave, Healthwatch volunteer, updates us with how his recent cancer journey is going. I had my appointment with the nurse on 17th
Dave, Healthwatch volunteer, recently had need of accessing the NHS for non COVID-19 reasons. Shortly after the New Year I discovered a
In Daisy's 7th blog she discusses management and treatment of the rare disease, Ehlers-Danlos Syndrome, Hi everyone. Today I am going to
In the sixth blog of the series about the rare disease, Ehlers-Danlos Syndrome, Daisy explains about the common comorbidities of the condition.
In the fifth blog of the series about the rare disease, Ehlers-Danlos Syndrome, Daisy explains her journey to diagnosis My Diagnosis This is
Susan Clark, HWCB volunteer, tells us about having the Covid-19 vaccination. I went for my appointment via the NHS, not the doctor's
Daisy, Young Healthwatch volunteer, writes the fourth blog in the series about the rare disease, Ehlers-Danlos Syndrome Vascular Ehlers-Danlos Syndrome Hi everyone,
Young Healthwatch volunteer, Valentina, writes an emotional article about her online friendship, through the pen pal scheme. Some people are fortunate to
Daisy, Young Healthwatch volunteer, writes the third blog about the rare disease, Ehlers-Danlos Syndrome Hypermobile Ehlers-Danlos Syndrome Hello! This is the 3rd
